Results: 8

For: primary care AND down syndrome

We need to empower & educate all stakeholders and provide person-centred care to move LD health care forward and reduce health inequity

Health information

Despite an increasing body of research evidence that demonstrates the ongoing health inequalities experienced by people with learning disabilities, there have been few changes in policy and practice.

In her debut blog, Rosalyn Hithersay presents a paper that describes a series of workshops that took place in 2013 with the aim of addressing this shift from evidence to action.

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Managing the care of adults with Down syndrome

RCGP annual health check guidance

Down syndrome is the most common cause of learning disability in the UK and life expectancy has shown a dramatic increase in the last fifty years. However, people with Down syndrome face significant health issues.

In this blog, GP Matt Hoghton looks at a recent clinical review published in the BMJ, which provides advice and guidance on managing care and support for people with Down syndrome.

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Confidential Inquiry into premature deaths WeLD Nurses tweet chat with authors and the LD Elf

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Following our recent post on what has happened since the publication of the CIPOLD Confidential Inquiry report, we joined a tweet chat hosted by WeLDNurses with two of the report’s authors: Pauline Heslop and Matt Hoghton.

It was a really lively hour with some fantastic contributions. Here we present a summary of the comments with some links to information that was mentioned during the chat itself.

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Evidence to guide treatment of dementia in people with learning disability may be lacking, but new areas of research might help

As people with learning disabilities are living longer, then they are also experiencing age related disorders such as dementia, where they have been shown to have a higher risk than the general population. Here we look at a review of the current state of knowledge which looks at a range of issues, from prevalence, assessment, treatment and future directions for research.

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Visual deficits in adults with Down syndrome explored

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Research by SeeAbility and the RNIB suggests that adults with learning disabilities are ten times more likely to be blind or partially sighted than the rest of the population. If they have severe or profound learning disabilities, then they are likely to have serious sight problems. There already exists some guidance for GPs on responding [read the full story…]

Comparison of chlorhexidine application methods on dental health of people with Down syndrome

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Periodontal disease refers to issues relating to or affecting the tissues surrounding the neck and root of a tooth, It is a significant oral health problem for people with Down syndrome. It can be a cause of tooth loss and has a number of contributing factors, which includes poor oral hygiene. Antimicrobial agents like chlorhexidine [read the full story…]

Quality of diabetes care indicators were not achieved for many people with learning disabilities in one UK health region

Good health care is dependent on cooperation between health care professionals and support workers in order to maximise care, health and functioning for people with learning disabilities

Background In 2010, Emerson and Baines in a search of the literature on healthcare issues for people with learning disabilities identified at least one study where increased rates had been reported. In 2011, we reported on a US study which found in one cohort, significantly higher prevalence of diabetes in adults with ‘cognitive limitations’ when [read the full story…]

Health surveillance insufficient to meet healthcare needs of people with Down syndrome in Finland study

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Researchers in Finland looked at medical problems in a population of people with Down syndrome and compared health surveillance to recommendations in national guidelines. They looked at case records from the specialist services in primary healthcare and disability services. They found many age-specific medical and surgical problems, including  congenital heart defects and middle ear infections [read the full story…]