Background Offering choice to patients is at the heart of the NHS, supported by a set of legal rights (see the Choice Framework) and patient led assessments of care environments have been introduced (PLACE) applying to hospitals, hospices and day treatment centres providing NHS funded care. At present this covers only care environments, not clinical care [read the full story…]
Digital mental health is thriving in 2013 and we are thrilled to be part of the growing community with our Mental Elf website and app. We have had time to reflect on the development of the Mental Elf website recently, as André was interviewed by Hannah Nicklin from Hide and Seek who had been asked to [read the full story…]
Involving people with learning disabilities in research that affects them is part of the tradition of engaging with communities to ensure that there is ‘nothing about us without us’ – a key plank of the valuing people strategy in the UK. This U.S. study set out to consider how academics understand the best way to [read the full story…]
Getting feedback about interventions from people with learning disabilities involves a number of challenges, including of course communication difficulties The researchers in this study were interested in how occupational therapists (OT’s) gathered feedback from people who used their services. They looked at this by asking 70 OT’s to complete a questionnaire and a subset of [read the full story…]
Physical interventions are still widely used in learning disability services, with BILD estimating their use in around half of all people with learning disabilities and challenging behaviour. The experience of people with learning disabilities of such interventions is not something that has been reported widely in the literature, but the researchers in this study set [read the full story…]
Since the formation in 1998 of the palliative care for people with learning disabilities network, there has been some work bringing together service providers and carers to enable better co-ordination of care for the benefit of people with learning disabilities who have palliative care needs. However, there is still a lack of research into the [read the full story…]
Modernisation of social care and the move towards personalisation have opened up opportunities for people with learning disabilities to take control of their supports through using individual budgets to employ supports. This study set out to look at the impact of this policy change on people with learning disabilities and their families employing their own [read the full story…]
A number of recent inquiries have highlighted the concern that people with learning disabilities may on occasion be denied access to their basic human rights. The authors of this study set out to explore this concern in relation to approaches to risk management taken in services, which they suggest may focus too much on professional [read the full story…]
A keystone of policy relating to the support of people with learning disabilities in England is the involvement of service users in planning and delivering their support. This is also reflected in policy relating to risk assessment and management processes. However, the evidence from the literature at present suggests that this involvement is not yet [read the full story…]
People with profound and multiple learning disabilities (PMLD) are some of the most excluded in society. The recent guidance from the Department of Health (Raising our sights) suggested that services could do much better in involving people with PMLD in decision making. The Involve Me project (a partnership between the Renton Foundation, Mencap and BILD) [read the full story…]
