End of life dementia care: helping people live well and die well

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A group of UCL Mental Health MSc students summarise a recent clinical review of the challenges we face in providing end of life dementia care.

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Advance care planning in dementia nursing homes with family carers

Josie Dixon considers a paired-cluster randomised controlled trial of an advance care planning intervention, called the Family Carer Decision Support (FCDS) intervention, undertaken by Kevin Brazil and colleagues (2018) in dementia nursing homes.

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Antipsychotics for delirium in palliative care: new RCT suggests non-drug alternatives are needed

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Samei Huda highlights a recent RCT of antipsychotics (risperidone and haloperidol) versus placebo for symptoms of delirium in palliative care, which suggests we need non-drug alternatives for this group of patients.

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Do house calls benefit older adults with dementia?

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Clarissa Giebel looks at a US study on the impact of ‘house calls’ on health and social service use by people with dementia, and asks some critical questions of the research.

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End-of-life care for people with learning disabilities. Views of service-users and family carers

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People with learning disabilities are living longer than ever before, so more people are likely to need palliative care services and end-of-life care.

Here, Fawn Harrad looks at a study, which set out to listen specifically to the views of people with a learning disability and family carers in receipt of palliative care services.

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Advance care planning for people with advanced dementia

It's important that practitioners don't let dementia get in the way of other health problems, such as depression or anxiety. 

Clarissa Giebel, Researcher and PhD student at the University of Manchester, writes her debut Elf blog on a qualitative study about the experiences of advance care planning amongst family caregivers of people with advanced dementia.

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Nuffield Trust offers an insight into the costs of end of life care

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This report from the Nuffield Trust is an important addition to the literature base on end of life care as it attempts to quantify the costs involved in end of life care, from the perspectives of the various services involved.  Although there are limitations to the cost estimates, which are explicitly acknowledged, the findings will [read the full story…]

Dementia through the eyes of a carer: What would you want for your relative?

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Josephine Neale summarises a recent review of qualitative evidence that finds carers’ views are mixed and lie on a spectrum of acceptance of their relative as actively dying with dementia.

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Combination of clinical and managerial expertise transform local healthcare, case studies demonstrate

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This collection of case studies is aimed at all people involved in the development and delivery of quality health services, in particular, commissioners, local authorities, voluntary sectors, and health professionals in all settings, including primary and secondary care. Some of the CCGs are also working with organisations from the retail sector, for example John Lewis. [read the full story…]