Stigma is a major problem encountered by people afflicted with mental illness. In a 2008 report published by the UK-based anti-stigma campaign Time To Change, two thirds of mental health service users reported being treated differently (in a negative way) because of their mental health problems, and a similar number reported that stigma and discrimination, and fear of these, stopped them from doing the things they would like to do. Nearly all service users (9 out of 10) agreed that stigma and discrimination had a negative impact on their lives (Time To Change, 2008). Stigma has also been shown to prevent people from seeking help for their problems in the first place (Clement et al, 2015).
Because of this pervasive negative impact of stigma, researchers have recently proposed its consideration as a fundamental cause of health inequalities (Hatzenbuehler et al, 2013). The increasing recognition of stigma as a key threat to the health of societies has driven efforts to reduce stigma through interventions. This was also the aim of the current study. Because mental health problems often arise first in adolescence, this study aimed to modify stigma and knowledge of mental illness in high school students.
Methods
This study is a randomised controlled trial (RCT) of a school-based mental health literacy intervention for adolescents, to increase knowledge of mental illness and reduce stigma. The trial took place in Ottawa, Canada. All schools in the region were offered the opportunity to receive the intervention, with 30 agreeing, and 6 dropping out thereafter. Thus, the intervention took place in 24 high schools comprising 534 students who were on average a little older than 16. Each school was randomly assigned to either receive the intervention or to conduct teaching as usual. So, compared to other randomised controlled trials that assign people to treatment conditions, this cluster RCT instead assigned schools to treatment conditions.
The intervention program consisted of a six-module 4-8 week curriculum guide (including lesson plans, classroom activities etc.) that aimed to increase adolescents’ mental health literacy, by covering aspects such as stigma of mental illness, understanding mental health and illness and seeking help and support (see here http://teenmentalhealth.org/curriculum/). The program was delivered through the students’ regular teachers, who received training on how to use it appropriately.
Changes in mental health knowledge and stigma/attitudes towards mental illness were evaluated by giving students questionnaires asking about these things, right at the beginning and then after the program. These questionnaires were designed by the authors themselves, based on the material covered in their curriculum.
Results
How did teachers experience their work with this program?
Teachers were asked about their experiences using the curriculum guide. Most teachers felt that the curriculum materials were engaging for the students and that they were relevant and age-appropriate. 3 out of 4 teachers felt more comfortable talking to their students about mental health after delivering the program. The same number rated the curriculum as very good or excellent. Sadly, little is known (or reported in the paper) about the experiences of the teachers who did not agree to these statements.
Did the students’ knowledge and attitudes change?
The findings on the effectiveness of the curriculum were positive. Students in the curriculum group showed a statistically significant increase in their knowledge of mental health when comparing their scores before and after the program. Students in the control group, who received teaching as usual, appeared to show the opposite tendency, although, as the change was not statistically different from zero in this group, we cannot interpret it as a decrease, but best view it as a non-significant change in knowledge. Curiously, the control group appeared to have had higher knowledge of mental health problems relative to the intervention group at the beginning of the trial, although it is not reported whether this difference was significant.
For stigma, the results were very similar. Students in the curriculum group increased in their positive attitudes from the beginning to the end of the program, whereas students who did not receive the curriculum showed no significant change.
As the authors report, the randomisation did not result in completely equal groups with regards to some characteristics. The control group included more girls, and also more students who were part of the university stream (as opposed to a college stream). When analysing the data considering the differences in stream, the results showed that the positive effects of the program were limited to students in the university stream (although, as the authors say, the numbers of college stream students may have been too low to find meaningful effects for them). It is not clear whether the differences in boy/girl ratio between the groups had any bearing on the findings, as an analysis of these is not presented.
A second additional analysis was conducted to assess the extent to which knowledge and positive attitudes of mental illness were correlated. The authors found a significant positive association between the two, interpreting this to mean that increases in knowledge predicted increases in positive attitudes. As this analysis is a cross-sectional one, we are unable to know whether this is really the case, or whether reductions in stigma facilitated greater knowledge gain.
Conclusions
There are several important conclusions we can draw from this study.
The study curriculum seemed easy enough to integrate into pre-existing school programs, and teachers appeared overwhelmingly comfortable with delivering mental health literacy programs to their students. This is a very relevant finding, because it suggests that effective mental health literacy interventions can be embedded into the local school infrastructure.
Of course, an important question pertains to the extent that the program can be generalised to other schools. Judging by the information in the paper, the Ottawa school district already has an established “Healthy Living” curriculum, which may lend itself to integrating mental health information. This may not be the case in other schools. In addition, schools were offered the opportunity to participate, i.e. the schools included in the trial were those who volunteered to participate. It would have been extremely interesting to know how representative these schools were of all available schools in the district. This does not mean the program will not be effective in other schools (even within the schools in the study, it was randomised who did and did not receive the program), but it requires some careful thinking and planning of how to accommodate the program in different schools.
Similarly, as the authors themselves say, the program may need more adaptation for students in the college stream, who seemed to benefit less from the materials compared to students in the university stream.
On a particularly positive note, the study clearly demonstrates that stigma and attitudes towards mental health can be changed, and that such a change can be achieved through relatively inexpensive and easy-to-implement means. Of course, there are many interesting future questions to examine here:
- Is the change in attitudes stable, or does it reduce after some time?
- Does this change in attitudes translate into students’ different behaviour towards children with mental health problems? After all, it is one thing to indicate on a questionnaire how you feel about people with mental illness, and a different one to modify your day-to-day behaviour accordingly.
- Do children with mental health problems experience more support and are more likely to seek help for their problems in schools that implemented the curriculum?
The answers to these and many more questions are to be addressed by future studies, and such and other research on stigma will have a real impact on the well-being not only of those who experience mental illness, but every single one of us.
Links
Primary paper
Milin R, Kutcher S, Lewis SP, Walker S, Wei Y, Ferrill N, Armstrong MA. (2016) Impact of a Mental Health Curriculum for High School Students on Knowledge and Stigma: A Randomized Controlled Trial. Journal of the American Academy of Child & Adolescent Psychiatry (2016), doi: 10.1016/j.jaac.2016.02.018. [Abstract]
Other references
Time To Change (2008) Stigma Shout: Service user and carer experiences of stigma and discrimination (PDF).
Clement S, Schauman O, Graham T, Maggioni F, Evans-Lacko S, Bezborodovs N, Morgan C, Rüsch N, Brown JS, Thornicroft G. (2015) What is the impact of mental health-related stigma on help-seeking? A systematic review of quantitative and qualitative studies. Psychol Med. 2015 Jan;45(1):11-27. doi: 10.1017/S0033291714000129. Epub 2014 Feb 26. [PubMed abstract]
Hatzenbuehler ML, Phelan JC, Link BG. (2013) Stigma as a fundamental cause of population health inequalities. Am J Public Health. 2013 May;103(5):813-21. doi: 10.2105/AJPH.2012.301069. Epub 2013 Mar 14.
Mental health literacy: can it be taught to teenagers? https://t.co/Xf3eU6XkDQ #MentalHealth https://t.co/qveYNST2M9
Today @jasminwer on the impact of a mental health curriculum for high school students on knowledge and stigma https://t.co/L5nNKezhcx
Mental health literacy: can it be taught to teenagers? https://t.co/6KoHbxr7h7 @StanKutcher @DoctorsOfBC @BCSups @BC_STA @bctf @SD22Vernon
Mental health literacy: can it be taught to teenagers? https://t.co/cz9qbObGcB via @sharethis
Morning @StanKutcher We’ve blogged your #MentalHealth curriculum RCT https://t.co/L5nNKezhcx Let us know what you think. Cheers, André
@Mental_Elf thanks. Good critical review It works 1 PCS replication PCS RCT Results overall significant substantial sustainable @Educhatter
@Mental_Elf @Pixel_Learning @Hannahknight89 worth looking at?
Mental health literacy: can it be taught to teenagers? https://t.co/xNm31Vvnaw
#Mentalhealth literacy: can it be taught to teenagers? https://t.co/3WoixhtzoH @Mental_Elf looks at an #RCT of a school intervention #stigma
Mental health literacy: can it be taught to teenagers? https://t.co/xYbl8ZdJ0l via @sharethis
Una intervención breve en el curriculum académico de los adolescentes mejora las actitudes ante la enfermedad mental https://t.co/cEm7NGGGOv
Is it possible that increasing mental health literacy leads to increasing mental illness? (mechanism unknown)
Not sure, but I think there may be some confusion.
Our data on improving mental health literacy (MHL) in schools is showing the following (across many different studies of different types, in many different locations, with many different population compositions and in different countries on different continents)
1) Significant (very low P values); substantial (d values from 0.3 to 2.4); sustained (measured over months) improvements in knowledge; decreases in stigma; improved help seeking efficacy (knowing when to get help, where to get help, and learning skills for self-care). These factors DO NOT LEAD to mental illness. On the contrary, they are fundamental factors that improve secondary prevention and thus decrease morbidity and mortality when paired with access to effective treatments.
2) Some recent data is showing that measures of mental health (such as GHQ) improved significantly in students AND teachers involved in the intervention compared to controls. This is very interesting and needs replication but it shows that this DOES NOT LEAD to mental illness, and indeed may have some “protective” impacts.
3) Some recent data shows that teachers have similar results to students, PLUS they are better able to help friends and family members access care when needed – thus improving secondary prevention – this DOES NOT LEAD TO MENTAL ILLNESS
Mental health awareness without mental health literacy often leads to confusion between what are normal and expected negative emotional states and what are mental illnesses. The last decade and a half of whole school approaches that focused on raising self-esteem and decreasing stress have led (according to some concerned critics) to youth who are unable to effectively deal with the “slings and arrows of outrageous fortune”. Our mental health literacy interventions have the opposite focus – understanding everyday stress not as “fight or flight” but as “excite and delight” and teaching students to embrace uncertainty and use their cognitive capacity to channel the normal stress response into positive problem solving activities. This improves self-efficacy and decreases the identification of normal challenging emotional states as mental illness. So, on the contrary to your consideration, good MHL DECREASES the risk that youth will consider their normal emotional states a mental illness, while concurrently providing them with real life skills for courage instead of victimization in the face of adversity. We are now designing a study to test out these considerations.
Indeed, all the data that we have points to the outcome that improving MHL in students and teachers leads to a host of improvements in prevention, mental health status and appropriate care seeking. Not too bad for a simple, pedagogically appropriate, inexpensive intervention that can be easily applied and does not promote the psychotherapy, positive psychology or pharmaceutical industries.
Hope this helps clarify. Cheers – Stan
Good stuff Stan, I agree completely as you know.
What might increase mental health illness risk is sensitizing youth without giving them an emotional literacy context; such as may have occurred in the trial by Stallard and Sayal (http://www.bmj.com/content/345/bmj.e6058) where CBT in schools given to well adolescents at risk for depression increased negative cognitions at follow up. The absence of a contextual understanding of what mental health is may leave participants with greater awareness of their ‘mind’ but no great comprehension of what this ‘mind thing’ really is. This literacy or knowledge acquisition phase is pretty important for teachers and parents too as Stan notes. Unlike physical health parameters the community at large do not know how to judge their mind states or provide explanations to themselves for variations in these states. This is very different to the known centuries of work on giving a proper understanding to physical states such as a cut finger, broken leg etc. As I have said to others we do not yet have a language for the cut brain or the fractured mind that is taught to us all. In adolescence this is amplified by the absence of a good literacy programme to explain maturation and development form the mental perspective. We are not bad now at describing physical maturation, but remain pretty poor at the mental counterpart during this time of life.
Best, Ian
To me, all of this triple underlines the “whole community” approach. Single interventions in discrete groups using a single tool may well exaggerate incidence, but a holistic approach which captures all stakeholders at all developmental stages via multiple, evidence based pathways will shift the entire narrative and consciousness of organisations and communities. As yet, as Ian says, we are even struggling with some of the semantics and phraseology. We need a new language of mental health or at the very least a bigger and more widely accepted dictionary. Critically, prevention based strategies must be encompassed by rigorous early intervention programmes and this may be where other “wellbeing” programmes have faltered; amplifying the discussion and perhaps surfacing latent psychotic tendencies but without treatment and intervention. Better to surface nascent traits at a young age and address them than let them fester and develop into full blown very expensive, societally problematic psychosis and behaviours later. Even if it were possible to “make” a young person mentally ill through well intended but inappropriate education (which I doubt with good programmes), this would likely be very rare and also mild, tier 1 in presentation and thus comparatively easy to manage. Put another way, more brutally, in worrying about the 1 in 10,000 might we forsake the one in every classroom who is presently ill or trending that way……..?
YES!! Mental health literacy: can it be taught to teenagers? https://t.co/jSdo0EQa7i .@TMentalHealth #rvsed
RT @Mental_Elf: Don’t miss – Mental health literacy: can it be taught to teenagers? https://t.co/L5nNKezhcx #EBP
Really interesting discussion about mental health literacy & mental illness prevention taking shape on our blog https://t.co/L5nNKezhcx
RT @chrispawluk: YES!! Mental health literacy: can it be taught to teenagers? https://t.co/JnHPUPOkXI .@TMentalHealth #rvsed #abed
Mental health literacy: can it be taught to teenagers? https://t.co/IYV6C3XAkn via @sharethis
Mental health literacy: can it be taught to teenagers? https://t.co/s74rmetr99 via @sharethis
Mental health literacy: can it be taught to teenagers? https://t.co/StsybaiDW8 via @sharethis
#MentalHealth literacy: can it be taught to teenagers? https://t.co/nKEAjaaCUG
RT @Mental_Elf: Should we bring this Canadian mental health curriculum to the UK? https://t.co/L5nNKezhcx @StanKutcher @GregorWell@TheMindE…
#Youth #MHFA https://t.co/3d9neQrFV3
Mental health literacy: can it be taught to teenagers? https://t.co/O4yzCKxKUN via @sharethis
Mental health literacy: can it be taught to teenagers? https://t.co/AbgsVDAm20 @robinfromcamhs @fellows_connect https://t.co/tEpHla4Sbj
Mental health literacy: can it be taught to teenagers? https://t.co/V7BNQEfz06 via @sharethis
@helengilburt @cityalan e.g. Teaching mental health literacy in schools? https://t.co/L5nNKezhcx
@Mental_Elf @cityalan Need to consider model if/how changing knowledge & attitudes influences behaviour; pre-post training eval very limited
@MarkOneinFour Perhaps we should be focusing less on big anti-stigma programs & more on specific interventions e.g. https://t.co/L5nNKezhcx
https://t.co/3h6t68OEB6 pertinent for #BetterMentalHealthNow
I would like to direct an inquiry to the study authors. I’m curious about the extent to which “mental health literacy” in your study was equated with endorsement of the view that DSM-defined mental disorders are valid illnesses with known biological causes. I’ve read your article and the teenmentalhealth.org website and was unable to determine what specifically was taught to participants regarding these topics. I was also unable to determine specifically how you assessed mental health literacy given that you used a novel measure of mental health knowledge and did not report its items.
I will assume for the moment that you did define mental health literacy thusly, as is standard practice in this area of research. Based on this assumption (and please correct me if I am mistaken), I’m curious about how your approach to mental health literacy and stigma reduction accounts for two observations: (a) it is now widely acknowledged that mental disorders are not valid illnesses with known biological causes (e.g., this is now the position of the US NIMH, which has largely abandoned DSM-focused research for this reason), and (b) research (summarised by Haslam & Kvalle, 2015: http://cdp.sagepub.com/content/24/5/399.abstract) demonstrates that endorsement of biogenetic explanations of mental disorders “may soften public stigma by diminishing blame, [but] increase it by inducing pessimism, avoidance, and the belief that affected people are dangerous and unpredictable. These explanations may also induce pessimism and helplessness among affected people…”.
Thank you for considering my inquiry.
Cheers, Brett
Hi Brett, this is Jasmin (I wrote this blog). Thank you for your comment. I don’t know if you saw, but on the link that I posted in the blog (http://teenmentalhealth.org/curriculum rather than just http://teenmentalhealth.org/) there is quite a bit of information on the program. For example, you can read there the pre-/post questionnaire questions (here: http://teenmentalhealth.org/curriculum/teacher-knowledge-update/activity-1-teachers-self-evaluation/) and there is a summary of the curriculum guide (http://teenmentalhealth.org/curriculum/wp-content/uploads/2015/09/Mental-Health-High-School-Curriculum-Guide.pdf) I think you might find this interesting and from browsing through it, I think it may answer some of the questions you raised in your comment.
Again, thank you for reading and commenting!
Jasmin, thank you for replying with those helpful links. I’m still not able to ascertain how the authors assessed mental health literacy in their study, but thanks to the lengthy curriculum guide you posted (http://teenmentalhealth.org/curriculum/wp-content/uploads/2015/09/Mental-Health-High-School-Curriculum-Guide.pdf) I can now see what kind information they disseminated. My assumption that the authors were teaching teenagers that psychological problems are valid illnesses caused by biological abnormalities is correct. Here are some quotes from the curriculum guide:
-“Here’s what we know about mental disorders: ….[they] Derive from brain dysfunctions – brain disorder”
-“What happens in the brain when it gets sick? A specific part of the brain that needs to be working on a specific task is not working well; A specific part of the brain that needs to be working on a specific task is working in the wrong way; The neurochemical messengers that help different parts of the brain communicate are not working properly.”
-“All Anxiety Disorders arise from disturbances in the different brain areas or connections amongst the areas that comprise the signaling circuitry of the brain.”
-Regarding Major Depressive Disorder: “The cause is not well understood but is believed to be associated with a chemical or other problem in the parts of the brain that control mood.”
-“Mania, like Major Depression, is believed to be associated with chemical changes or other problems in how nerves in the brain communicate which can often be corrected with medication.”
These quotes indicate that the authors have created an anti-stigma program in which teenagers are taught that DSM-defined psychological problems like anxiety disorders and major depression are valid diseases of the brain likely caused by biological abnormalities, such as chemical imbalances and abnormalities in brain structure and/or function. Medications are described as likely working by correcting these brain problems. (Note: psychosocially-oriented information was conveyed as well; I’m highlighting the biomedical claims above, in particular, for critical analysis).
It must be noted that such claims are controversial and, in the view of many experts, not consistent with the available scientific evidence. A critical analysis of the view that psychological problems are valid illnesses, with known causes such as chemical imbalances, may be found in this special issue of the Behavior Therapist: http://www.abct.org/docs/PastIssue/38n7.pdf. I must ask the authors directly: do they believe the chemical imbalance theory of mental disorders is valid? And do they believe that psychotropic medications work by correcting a chemical imbalance in the brain? This is what their anti-stigma program claims, yet I am not aware of any reliable scientific evidence to substantiate such claims. If the authors are aware of empirical evidence that justifies informing teenagers that their emotional problems are brain illnesses caused by a chemical imbalance, or that medications for such problems work by correcting a chemical imbalance, I’d very much like to see it.
The general concern I’m noting in this post is that the authors, in my view, appear to have taken some scientific liberties in teaching teenagers that mental health problems are biologically-based illnesses. Accordingly, the last observation I wish to make is that the first 2 authors of this paper, Drs. Milin and Kutcher, have extensive histories of financial conflicts of interest with pharmaceutical companies that stand to profit from disseminating the view that teenage mental health problems are biological illnesses. These conflicts were not disclosed in the target article (Milin et al., in press), but were easy to find in a 5-minute Google search. And their existence is far from inconsequential in a critical scientific analysis of this article:
Author #1 Robert Milin: “Dr. Milin has served as a consultant to and speaker for and has received grant support from AstraZeneca Canada, Eli Lilly Canada, and Janssen-Ortho.” (http://www.jaacap.com/article/S0890-8567(09)62288-7/abstract)
Author #2: Stanley Kutcher: “Of Kutcher, it lists that he had been a paid consultant for GlaxoSmithKline. It also says that he had “received research grants from, has been a consultant for, or participated on advisory boards of” pharmaceutical heavy-weights GSK, Pfizer, Eli Lilly. He disclosed nine drug companies in total. (Halifax Media Coop, 2011)”
Cheers,
Brett
Mental health literacy: can it be taught to teenagers? https://t.co/o8sIbwBLSe via @sharethis @mental_elf #schoolbasedmentalhealthliteracy
[…] Mental health literacy: can it be taught to teenagers? […]
Mental health literacy: can it be taught to teenagers? https://t.co/YxpZHi4dau via @sharethis