Williams syndrome is a neuro-developmental genetic disorder caused by gene deletion estimated to have a prevalence of 1 in 7,500 to 1 in 20,000 live births. Previous studies have identified anxiety as part of the behavioural phenotype of the syndrome The authors of this US study set out to look at the effectiveness and adverse [read the full story…]
Tooth loss can have important physiologic and social impacts and a strong association has been shown between tooth loss and impaired oral health–related quality of life (OHRQoL). The aim of this review was to see whether oral rehabilitation following total or partial tooth loss had an impact on (OHRQoL). PubMed, the Cochrane Central Registry of [read the full story…]
Burning mouth syndrome (BMS) presents as a subjective burning sensation of the tongue, lips or entire oral cavity, but does not manifest any objective lesions or laboratory test findings. BMS is more common in middle-aged to elderly age groups. The aim of this study was to evaluate the efficacy of a tongue protector in combination [read the full story…]
The Mencap Getting it Right campaign was launched some time ago in recognition that people with a learning disability were getting a raw deal from the NHS, with unequal access to treatments and reports of poor care. A range of reasons may lie behind this poor response, including inadequate training, lack of support, lack of knowledge [read the full story…]
The healthcare needs of people with learning disabilities have been well charted in the literature, although the response of healthcare services to these needs has often been poor. Recent reports including Mencap’s Death by Indifference, which told the stories of six people with learning disabilities who died in the care of the NHS, the Disability [read the full story…]
Services for people with learning disabilities will be subject to external scrutiny to ensure they are meeting minimum standards of care delivery and will also have internal quality assurance processes to look at the quality of the support they provide, The key question however, particularly in a situation where an individual may be getting support [read the full story…]
The need to use patient reported outcome measures (PROMs) is increasingly recognised. Patients satisfaction and oral health-related quality of life are two such measure . The main aim of this study was to evaluate the level of association between patients’ denture satisfaction and oral health-related quality of life (OHRQoL) in edentate patients, and to identify [read the full story…]
We have posted previously about the use of active support which involves training staff in working practices and organisational procedures to improve levels of participation and increase levels of engagement in activities. The purpose of the current study however was to look at the impact of active support approaches on other outcome measures. The researchers [read the full story…]
One of the key findings of the early research into community services for people with learning disabilities who had lived in long stay institutions, was that the quality of first line management was one of the main factors affecting outcomes. This Australian study set out to look at the work of front-line managers in supported [read the full story…]
We have posted many times about the issue of overweight and obesity in people with learning disabilities. This study in France set out look at health-related fitness in adolescents with learning disabilities and to analyse various performances in physical fitness tests according to degrees of obesity in that poopulation. The researchers worked with 87 French [read the full story…]
