Many years ago I had friend, Sam (not her real name, but something similar). For various reasons we’d found ourselves living at a community farm hostel in Scotland. Sam had recently been released from The State Hospital and was on a high dose of haloperidol. She had facial muscle spasms from her medication and had largely lost the use of one arm in an incident of severe self-harm.
As I got to know Sam and her history, things started to make sense, but the way she’d been treated made very little sense. She had made a serious attempt on her mother’s life, because when she was very small until she was old enough to leave home, Sam’s mother had sold her to men in exchange for money to buy heroin. In the context of such extreme multiple abuse and trauma, Sam’s reactions had logic to them. I got to know Sam as a kind, generous woman who loved animals and was a protective friend. What was ‘wrong’ with Sam was what had happened to her.
When I read this paper which explores trauma informed mental health care, I thought of Sam and wondered how things could have been different for her if she’d had it. The approach determines that:
survivors in crisis are not viewed as manipulative, attention-seeking or destructive, but as trying to cope in the present moment using any available resource (p.179)
In Sam’s case this would have made perfect sense where the traditional psychiatric and criminal justice interventions seemed to make things worse for her.
The authors, who are survivor researchers, say the purpose of their paper is to ‘describe and explain trauma-informed approaches to mental health’ and to set out the case for service users, survivors and allies introducing them throughout mental health and related health and social services in the UK.
Trauma informed approaches or TIAs for mental health services are strengths-based and
they reframe complex behaviour in terms of its function in helping survival and as a response to situational or relational triggers. Reframing refers to looking at, presenting, and thinking about a phenomenon in a new and different way, and replaces traditional individual/medical model approaches to madness and distress with a social perspective (p.179)
Social models of madness and distress have been explored in an earlier blog by Alison Faulkner, and this paper adds another dimension to the blog discussion on research into the connections between trauma and psychotic symptoms.
Methods
While not an empirical research study or systematic review, this paper offers a ‘conceptual account of trauma informed approaches including consideration of why they are important, what they are and how they can become more prevalent in the UK’. It uses a narrative review methodology to provide an overview of the evidence on the effectiveness of TIAs.
Using the title word search ‘trauma and informed’, the authors searched Medline, Embase, PsycInfo, CINAHL, Cochrane Library, Sociological Abstracts, Social Policy and Practice, Global Health and Maternity and Infant Care, from the earliest date of articles in each database up until August 2014. They identified 129 unique publications that were reduced to a final 8 studies using a set of inclusion and exclusion criteria.
No RCTs were found but seven were pre-post, quasi-experimental studies, with one being a qualitative study. All studies were conducted in the USA, with four evaluations of women’s specialist services.
The paper also includes information derived from fieldwork at the only NHS Trust in the UK to be promoting trauma informed approaches in mental health.
Findings
The paper cites the key principles of trauma informed approaches as being:
- Recognition of the prevalence, signs and impacts of trauma (the ‘trauma lens’)
- Resist re-traumatisation by understanding operational practices, power differentials and other potentially re-traumatising features of psychiatric services
- Cultural, historical and gender contexts and acknowledging community or other specific trauma
- Trustworthiness and transparency with the aim of building trust
- Collaboration and mutuality with an understanding of the power imbalances between service users and staff
- Empowerment, choice and control, with the adoption of strengths based approaches
- Safety encompassing moral, physical, psychological, social and cultural safety
- Survivor partnerships and an understanding that survivor leadership, peer support and coproduction are integral to trauma informed organisations
- Pathways to trauma-specific care with support for survivors to access it where desired.
Although limited and not generalisable, the findings of the narrative overview suggest that trauma informed approaches may have beneficial effects in the following:
- Reduction in seclusion and restraint;
- Reduced post-traumatic stress symptoms and general mental health problems;
- Increased coping skills;
- Improved physical health;
- Greater treatment retention and shorter inpatient stays.
However, other outcomes did not change such as emergency room use, substance use, imprisonment and shelter use.
The additional conceptual and scoping work in the paper included an examination of the use of trauma informed approaches in the UK, with the authors exploring the potential barriers and possibilities for bringing TIAs to the UK.
Many of the barriers identified relate to the fact that ‘mental distress is understood as a scientific, medical and pharmacological problem, rather than a human, familial or social issue’ (p.183), which requires a paradigm shift. The authors highlight the need for training, organisational cultures and environments to be reformed so that staff can practice trauma informed approaches, with a recognition of how trauma could also affect them.
Conclusion
The authors conclude that:
There is strong and growing evidence of a link between trauma and mental health, as well as evidence that the current mental health system can re-traumatise trauma survivors. There is also emerging evidence that trauma-informed systems are effective and can benefit staff and trauma survivors.
The authors conclude that, if we are to see an effective introduction of trauma informed approaches into the UK, we need:
survivor leaders and champions advocating for values-based system change with passion and commitment.
Strengths and limitations
The authors fully acknowledge the highly limited nature of the evidence base on effectiveness, which they report as one of their findings. However, they offer a comprehensive account of what trauma informed approaches are, and assess their implementation for mental health services in the UK, making the crucial point that this should be led by survivor champions and leaders.
Summary
This paper sets out a comprehensive case for furthering trauma informed approaches in mental health and allied services in the UK. It also highlights the need to invest in and undertake further research into the safety and effectiveness of these approaches, as well as stressing the importance of survivor leadership in any TIA programme.
In the light of increasing concern about patient safety on psychiatric wards, and testimonies of experiences of psychiatric care that are re-traumatising, this paper provides an urgent new blueprint for mental health care paradigm change. This urgency is surely demonstrated by a recent Tweet sent by survivor activist Alison Cameron from a private psychiatric hospital on an NHS contract. She reported that people in intensive care were being kept in a cage when outside. It could be Sam in that cage.
Links
Primary paper
Sweeney A, Clement S, Filson B, Kennedy A. (2016) Trauma-informed mental healthcare in the UK: what is it and how can we further its development? Mental Health Review Journal 21 (3) 174-192.
What happened to you? Trauma informed approaches to mental health care https://t.co/Ij5JMMxWld
What happened to you? Trauma informed approaches to mental health care https://t.co/6B1vE3oXMC Good piece on @Mental_Elf
What happened to you? Trauma informed approaches to mental health care https://t.co/3o6aHtuMIY via @sharethis
Today @SchrebersSister on trauma-informed mental healthcare: what is it & how can we further its development? https://t.co/HFzvtGgObs
What happened to you? Trauma informed approaches to mental health care https://t.co/frv2gUVqrW
*Just trying to survive in present*
Rachel Mary
@Mental_Elf @Quinonostante I agree that almost every I know with SMI has experienced trauma, but it’s so complex… exploring childhood…
@BipolarBlogger @Mental_Elf >agreed, & further trauma (such as nearly losing my son to brain tumour) adds more layers to deal with #bipolar
RT @Mental_Elf: New research suggests that UK mental health services need a paradigm shift to start working in a trauma informed way https:…
@Mental_Elf @Quinonostante …stuff has been useful for me but later trauma is caused by the traumatising effects of my own BP rather…
@BipolarBlogger @Mental_Elf > correct, sometimes treatment is re-traumatising, causes ‘lock down disassociation’ in my situation #bipolar
@Mental_Elf @Quinonostante …than treatment… I feel trapped in a rather tautological loop of, “What is happening to you?” “Bipolar”…
@BipolarBlogger @Mental_Elf >absolutely! I also feel confused about why I suddenly can’t focus on the trauma due to disassociation #PTSD
@Quinonostante @Mental_Elf No, you misunderstand, I specifically meant it *wasn’t* usually the treatment, it was the experience of the…
@Quinonostante @Mental_Elf …*symptoms themselves* – the experience of being in ongoing acute emotional pain. My own pain was far worse…
@BipolarBlogger @Quinonostante @Mental_Elf Am with you there.
@Quinonostante @Mental_Elf …than the hospital environment and I would rate my care as excellent over the past 5 years. Things that trigger
@Quinonostante @Mental_Elf …a trauma response in me are things like seeing another person in deep distress, even on TV, or reading ppl’s..
@Quinonostante @Mental_Elf …blogs about their distress, which I can’t do much any more.
@Quinonostante @Mental_Elf I loved my treatment actually, LOL, I miss HTT and ward staff because they made me feel safe and I am a loser ??
@BipolarBlogger @Mental_Elf > do you find over empathy to be both physical and mentally painful? I do, & makes it hard to engage with life
@Quinonostante @Mental_Elf Yes. I always have. I feel porous. I can listen to the news (usually) but can’t cope with footage of ppl in pain>
@BipolarBlogger @Mental_Elf – yes. Hearing is hard, seeing the images harder to erase from mind
@Quinonostante @Mental_Elf <mentally and/or physically. I get very panicky when ppl close to me have MH problems themselves.
@Quinonostante @Mental_Elf <and yet I have always been drawn to “helping professions” where I put myself in the way of that ???
@BipolarBlogger @Mental_Elf ‘snap’
@BipolarBlogger @Quinonostante @Mental_Elf not gonna like the ‘and I am a loser bit’ ?
@Sian_NP @Quinonostante @Mental_Elf :P
@Mental_Elf @Quinonostante …”What happened to you?” “Bipolar”. I’m not explaining myself well, trying to say that experience of SMI…
@Mental_Elf @Quinonostante …can in itself be traumatic – many other people have said similar to me – and how to we then escape that?
@Mental_Elf @Quinonostante Bear in mind I am probably 70% awake here at best ?
@BipolarBlogger @Mental_Elf @Quinonostante Makes a lot of sense to me too. Am also haunted by fear of my own mind, if I’m honest.
@SchrebersSister @BipolarBlogger @Mental_Elf – and when we crave a gentle, kinder world and environment we’re see as no living in reality ?
@Quinonostante @SchrebersSister @Mental_Elf *hides in bed*
@SchrebersSister @Mental_Elf @Quinonostante That is a really good way of putting it Sarah. Really good.
@BipolarBlogger @Mental_Elf @Quinonostante Thank you. Sincerely.
@SchrebersSister @Mental_Elf @Quinonostante It really resonated with me x
@BipolarBlogger @Mental_Elf @Quinonostante So good to have solidarity and mutual understanding about this! x
@SchrebersSister @Mental_Elf @Quinonostante *hugs* :)
@BipolarBlogger @SchrebersSister @Mental_Elf @Quinonostante and me. Spot on. x
@SchrebersSister @BipolarBlogger @Mental_Elf @Quinonostante I could be Sam as my GP says I’m a “product ” of my childhood & he never judges>
@SchrebersSister @BipolarBlogger @Mental_Elf @Quinonostante #selfharm as he knows it’s how I survive GP gets me more than many in psychiatry
@Mental_Elf I relive my 8yr old childhood experience of my 9yr old brother returned 2 a psych unit every time I hear/see distress with pts ?
What happened to you? #Trauma informed approaches to #mentalhealth care https://t.co/xtrtOhk5Av
MT @Mental_Elf What happened to you? Trauma informed approaches to my care https://t.co/Awu1W0u8Bf #NOTwhatswrongwu @JacquiDillon @lacanlune
MT @Mental_Elf What happened to u?Trauma informed approaches2care https://t.co/Awu1W0cxcF #NOTwhatswrongwu @SchrebersSister @JacquiDillon
@borromeannot @Mental_Elf @JacquiDillon Thank you for MT!
New blog by @SchrebersSister describes and explains trauma-informed approaches to mental health https://t.co/HFzvtFZcMS
@Mental_Elf @SchrebersSister Trauma is a huge unaddressed black hole at the centre of MH difficulties including MDD, So called PDs etc…
@caringcapitalis @Mental_Elf Amen to that…
What happened to you? Trauma informed approaches to mental health care https://t.co/84qeYmB5Gr via @sharethis
@Mental_Elf would be nice to feel that things that happened were bad because people were arses not because I have something wrong with me.
What happened to you? Trauma informed approaches to mental health care https://t.co/bcBdxTYfuv via @sharethis
RT @ClinpsychLucy: What happened to you? Trauma informed approaches to mental health care https://t.co/rqT96QjQd3 One of @Mental_Elf ‘s bet…
What happened to you? Trauma informed approaches to mental health care https://t.co/uq5FFLCDJg
>Great blog about trauma informed responses.
RT @Mental_Elf: Don’t miss:
What happened to you?
Trauma informed approaches to mental health care
https://t.co/HFzvtGgObs https://t.co/Rm4…
@Mental_Elf “distress is understood as a scientific, medical and pharmacological problem, rather than a human, familial or social issue”
@Mental_Elf Most cases of depression, bipolar, etc. are exacerbated by associated trauma such as child abuse, sexual abuse, etc.
RT @mcpherson_ian: A comprehensive case for furthering trauma informed approaches in mental health and allied services in the UK. https://t…
trauma why and how – informed no retraumatisation https://t.co/Mrd7jJvVW5
Great approach; makes so much more sense! Trauma informed approaches to mental health care https://t.co/mKU6ji9zS7 via @sharethis
https://t.co/3Vtu34Brfj
Trauma informed approaches #mentalhealth @SchrebersSister @MiddlesexUni @Mental_Elf blog @MindCharity @mentalhealth https://t.co/qPfq1n2SAC
What happened to you? #Trauma informed approaches to #mental #health https://t.co/6IiMTPkS0d
@Mental_Elf @HarrisoMary
‘What happened to you?’ rather than ‘What’s wrong with you?’ #traumainformed #compassion #Healing
@nursewhitebeard @Mental_Elf That’s my problem with DBT. I read skills training manual for therapists. No social context >
RT @kennylaingnurse: Really important we start to model mental health services with this in mind https://t.co/x06tZjFj24
What happened to you? Trauma informed approaches to mental health https://t.co/dJ1JMIHBSG
@Mental_Elf I sometimes ask “who/what scared you?”
There is an accumulation of evidence for trauma so there is a need to design services so that they do not retraumatise in and of themselves. They are not designed like that at the moment. We need to think about connection not correction. We need to think about Who someone is and how they are. We need to think about how we do that when our services are designed around being absent or being coersive.
RT @Mental_Elf: Most popular blog this week?
@SchrebersSister
What happened to you?
Trauma informed approaches to mental health care
https:…
What happened to you? Trauma informed approaches to mental health care https://t.co/riwXxQfiN6
What happened to you? Trauma informed approaches to mental health care https://t.co/5SE194zq03 via @sharethis
Good summary by @SchrebersSister of new paper by survivor researchers on trauma-informed approaches to mental healt… https://t.co/K0a9ClhzrV
What happened to you? Trauma informed approaches to mental health care https://t.co/ItqwiEpbrU via @sharethis
Excellent article. If this approach had been around years ago, I might be in better mental shape today. Following constant trauma and terror in childhood, I then went on to traumatise myself for many years. I think I was addicted, in some weird way, to the adrenaline rush of fear. I lives it for so long I needed it like a drug.
I’ve read that continued and sustained cortisol production in childhood can permanently affect the brain. Whether that’s true or not, my brain’s f….ed.
[…] What happened to you? – Dr Sarah Carr writes on trauma informed approaches to mental health care […]
At last the required and much needed paradigm shift, I hope so…..
Excellent approach. May we as clinician, need to go deeper and find the starting point of this trauma.
I think where is possible, help the client to forgive themselves and others that where hurt and raise hope of recovery.
[…] article considers T and R processes in the context of increasing interest in trauma informed approaches in mental health (TIAs), which Sarah explored in a previous blog summarising emerging evidence that many people who […]
Thanks for this! My new book Humane Helping (from Routledge, October, 2017) supports this paradigm shift, as does my 2016 book The Future of Mental Health, also from Routledge. In solidarity!
[…] Those that do may be faced with underfunded services ill equipped to provide the time and space to implement trauma informed approaches to mental […]
Hello just want to say its not always family that traumatise
patients, my son has SMI for 20 yrs and he is now in bad state NHS trust refuse him, clinician MDT or Psych or any Socil care, he is left isolated, depressed and lonely, we have struggled for many years and no elderly with our own health
probs. Just what can do when CMHT abort him off bks for no
reason, my son is a educated man…lost all.
the NHS omplaint sytem is dysfunctional in fact corrupt with
lies and trust must win at all costs, found all services including ccg work together to abort those that complain…