Stress associated with being the parent of a child with learning disabilities is well documented. Mencap’s Breaking Point campaign has highlighted this very clearly. Their survey of families found more than 9 out of 10 family carers reported high levels of stress with over half of family carers either having given up, or considering giving [read the full story…]
Autonomy is defined as the freedom to determine one’s own actions or behaviour. It is a value at the heart of health and social care support and those supporting people with learning disabilities are constantly striving to maintain and indeed increase the autonomy of those they provide help to. The authors of this Netherlands based [read the full story…]
Josephine Neale summarises a recent review of qualitative evidence that finds carers’ views are mixed and lie on a spectrum of acceptance of their relative as actively dying with dementia.
[read the full story...]
There are around 60,000 out-of-hospital cardiac arrests in the UK every year. Some of these events occur in the presence of relatives who may witness the cardiopulmonary resuscitation (CPR) by the resuscitation team (you can find out more about CPR at the Resuscitation Council’s website). The emotional consequences of this for the relatives and the [read the full story…]
Previous work to consider the issue of older parents of adults with learning disabilities has identified that a significant proportion are lone carers, often with a wide range of health problems of their own, and reporting high levels of anxiety as a result of their caregiving responsibilities. The researchers in this study set out to [read the full story…]
Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. This short guide has been written for Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. Commissioners need to be aware that palliative care for children is very different to palliative care for adults, [read the full story…]
Life after cancer diagnosis and treatment is full of uncertainties for the patients and their caregivers. The possibility of cancer returning is hard to dismiss at least in the first few years after the end of treatment. Life has often changed in many imperceptible and subtle ways for people who have undergone cancer treatment, as [read the full story…]
In February this year, we posted about new summary information sheets produced by the challenging behaviour foundation. This month sees the launch of a new series of three information sheets which look at the causes of challenging behaviour, and explain how to make effective plans to reduce it. The information sheets are designed to provide [read the full story…]
Carers are integral to health care improvement. This report highlights evidence that shows “the economic value of the contribution they make is £119bn per year”. However, without support, carers can feel isolated, depressed, and may be living in poor financial circumstances, which can lead to poor health for the carer too. The problem health and [read the full story…]
Early diagnosis and intervention for people with dementia is increasingly considered a priority. But there are still considerable barriers to achieving this, and nervousness from practitioners on the possible negative effect of earlier diagnosis of a condition widely perceived as untreatable and life-changing. A recent systematic review by Bunn et al analysed the qualitative evidence [read the full story…]
