We have posted previously about end of life issues for people with learning disabilities, for example, pointing to the impact of training in palliative care as well as to resources such as the films made by Change for the dying matters coalition that can be used to help include people with learning disabilities in discussions [read the full story…]
Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. This short guide has been written for Clinical Commissioning Groups, hospices, patients, carers, and all staff who provide palliative care to children. Commissioners need to be aware that palliative care for children is very different to palliative care for adults, [read the full story…]
Earlier this week, we posted about a study by Dr Tuffrey-Wijne and her colleagues which described the process of the development of guidelines to support decision making about disclosure or non-disclosure of bad news about life limiting illness to people with learning disabilities. That study was part of a broader programme of research that has [read the full story…]
In recent years, there has been a shift in clinical practice in relation to breaking bad news in favour of openness and the provision of information to patients. However, there is a small body of evidence that suggests that this shift in attitude has not impacted on people with learning disabilities, who appear still mainly [read the full story…]
Family and friends often play a very important role in supporting older people with long-term, severe mental health problems. It is estimated that 25% of the 6 million carers in the UK are supporting someone with a mental health problem (Carers Trust, 2007). Stress has been cited as having a major impact on the wellbeing [read the full story…]
As you know here at Elf towers, we are committed to bringing you the evidence, so that you can make informed decisions about practice. However I hope you’ll forgive a slight deviation from this aim this Friday, as we bring to your attention the publication of yet another report that highlights poor NHS care. On [read the full story…]
In recent years, a number of studies have begun to explore bereavement and grief in people with learning disabilities. Hollins and Esterhuyzen (1997) for example in the late 1990s reported the results of a matched control group study into the reaction of people with learning disabilities to bereavement, which found highly significant differences significant differences [read the full story…]
The Confidential Inquiry into premature deaths in people with learning disabilities (CIPOLD) was commissioned by the Secretary of State for Health as a result of a recommendation by Jonathan Michael in ‘Healthcare for All’ the report of the Independent Inquiry into access to healthcare for people with learning disabilities. The Confidential Inquiry team were charged [read the full story…]
Our friends at Norah Fry in Bristol who are responsible for carrying out the work on the confidential inquiry into premature death in people with learning disabilities have asked us to let you know that the final report of the study will shortly be available and that there will be two opportunities to hear some [read the full story…]
Last week we posted about a study looking at end of life are for people with learning disabilities through the experiences of the staff supporting them. This week, we would like to draw your attention to a new film that has been produced by CHANGE for Dying Matters and the National End of Life Care [read the full story…]
