Including people with learning disabilities as researchers and participants in RCTs is possible

our voice

There are specific difficulties in developing an evidence base for practice in supporting people with learning disabilities. There is general agreement that some degree of sprcialist services are required, but little agreement about the nature of these services or the best method of their delivery. It may be possible to transfer ideas directly from mental [read the full story…]

Predictors of quality of life in children with learning disabilities found in social and emotional well being of parents

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There is now a good body of literature concerned with the quality of life of people with learning disabilities and a number of practical approaches available to consider its measurement (for example personal outcome measures  and the Quality Network) The research has identified five domains of quality of life: material well-being, development and activity, physical [read the full story…]

New RCT suggests memantine is not an effective treatment for dementia in people with Down syndrome

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Our colleagues at the Mental Elf  found this small randomised controlled trial looking at the use of memantine for people with Down syndrome and dementia. The trial is being reported in the Lancet. People with Down’s syndrome are more likely to develop dementia than others and one in three will have the illness as early [read the full story…]

Targeted support and telecare can reduce staff input in services for people with learning disabilities

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The need for appropriately supported accommodation for people with learning disabilities continues to rise as people naturally move from family homes to their own.  Controlling costs of support has always been a major concern for the paying authorities, but this is particularly true in the current climate of financial constraint. They key challenge is how [read the full story…]

Study identifies challenges faced by people with learning disabilities and diabetes

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There is now significant evidence of under-diagnosed, inadequately managed preventable health conditions in people with learning disabilities and we have posted previously about this as well as drawing attention to a US study that found people with learning disabilities had significantly higher prevalence of diabetes than adults with no disability: 19.4% vs. 3.8%. Despite this, [read the full story…]

Women with learning disabilities perceive little or no control over their lives

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Whilst there has been an increasing interest in developing measures of quality of life for people with learning disabilities, there has been little research looking specifically at the experiences of women with learning disabilities aged 40 years or older. This study set out to look at this specific group and to do this, worked with [read the full story…]

Young people with learning disabilities may feel victimised by interpersonal conflict

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The researchers in this small study set out to explore the impact of interpersonal conflict on people with mild to moderate learning disabilities. Previous research has provided insights into the nature of the impact of such conflict on increasing stress and contributing to poor mental health, but few studies have looked at the experiences of [read the full story…]

Concept of quality of life of families of people with learning disabilities develops in research

family on beach

This review of the literature sets out to look at developments in concepts and measures of family quality of life. The authors identify a developing trend from interventions for people with learning disabilities based solely on the individual’s special needs independent of the family and environmental context through to a position where these needs are [read the full story…]

Using unnamed vignettes may underestimate carers responses to challenging behaviour in people with learning disabilities

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This study looked at the responses of paid carers to incidents of challenging behaviour. The author was interested in the potential inconsistency of responses. Studies of responses to challenging behaviour have used stimuli that might generate different responses from carers to those that might be generated by actual instances of behaviour of real people. To [read the full story…]

Case study of man with Asperger syndrome highlights impact of late diagnosis and lack of intervention on risk of offending

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This paper describes a case study of a young man with Asperger syndrome who set a fire in his home. The authors point out that offences may be committed by people with autistic spectrum disorders because of deficits in social skills, co-morbid mental health problems or abuse of drugs and alcohol. There may also be [read the full story…]