The authors of this qualitative study were interested in looking at the experiences of growing up with a brother or sister with an autism spectrum disorder from the perspective of their siblings. What they did was carry out a number of semi-structured interviews with 12 typically developing adolescents who had a brother with an autism [read the full story…]
The risks of congenital malformations and impact of cognitive development after foetal exposure to anti-epileptic drugs has been known for some time. Sodium valproate is a frequently used drug for epilepsy and other disorders (including bipolar disorder and migraine). The researchers aimed to examine the link between foetal exposure and subsequent development of autism. Methods [read the full story…]
Quality of life is becoming a common outcome in the reporting of trials. The authors of this literature review were interested to look systematically at the use of quality life as an outcome in pharmacological research on Autism Spectrum Disorders. Currently, the most frequently used outcome measures in such trials are measures of changes in [read the full story…]
For many mums-to-be it is advised that taking regular folic acid supplements during pregnancy, and whilst trying to conceive, has significant health benefits for their unborn baby, namely around reducing the risk of neural tube defects such as spina bifida (NHS, 2013). However, do these supplements also affect the risk of the unborn baby developing [read the full story…]
The authors of this study were interested in looking at support to adults with autism spectrum disorder in staffed housing services. Their focus was on looking at whether diagnostic congregation, or grouping people with similar diagnoses, was prevalent in services and if so, whether it had any impact on outcomes. They worked with 157 adults [read the full story…]
As you know, at Elf Towers, we strive to identify the evidence you need to help inform the way people with learning disabilities are supported. We have taken the unusual step today of pointing to a radio programme, from BBC Radio 4’s Word of Mouth series. The programme was broadcast this week and features the [read the full story…]
The National Autistic Society describe social stories as short descriptions of a particular situation, event or activity, which include specific information about what to expect in that situation and why. The authors of this study set out to look at the effectiveness of Social Stories with four adults with learning disabilities and social communication impairments said [read the full story…]
The final report into the events at Winterbourne View Hospital was published on Monday (10.12.12) and sets out a programme of action which aims to ensure that people no longer have to live in hospitals, but receive support in line with best practice. Key outcomes in the Government’s programme include: Proposals to strengthen accountability [read the full story…]
Shared decision making with family carers is clearly espoused in policy in the UK and elsewhere. The researchers in this U.S. study were interested to look at to what extent parents of children with autism spectrum disorder reported being engaged in such shared decision making. They set out to look at the association between shared [read the full story…]
People with learning disabilities and autism spectrum disorders may also have mental health problems. There is little in the literature on the mental health needs of such adults. The researchers in this study were interested in developing the evidence base to enable a clearer understanding of the kinds of service responses that might be needed. [read the full story…]
