John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Challenging behaviour services review finds specialist congregate services use more restrictive approaches with limited effect.

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This literature review looked at evaluations of service provision in the UK for people with challenging behaviours, reviewing the literature from 1990 to 2010 looking at studies that evaluated a range of UK service provision in terms of impact on challenging behaviour and other quality of life indices. The author found very few evaluations, although [read the full story…]

Review finds no consistent definition of trauma and no reliable means of measuring its effects in people with learning disabilities.

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This systematic review looks at the literature on the effects of adverse life events or trauma on people with intellectual disabilities. The authors point out that there is a limited number of studies in this area and that effects of trauma seen in the general population literature are not necessarily transferable to the intellectual disability [read the full story…]

People with learning disabilities identified ‘others’ as being responsible for making their healthcare choices.

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Two groups of individuals with a learning disability: (1: irregular attenders) people who had opted out of healthcare appointments for avoidable reasons and (2: regular attenders) people attending all appointments or when not attending, did so for unavoidable reasons. The study authors carried out a  series of interviews with four people with learning disabilities and [read the full story…]

Evidence of under-diagnosed, inadequately managed preventable health conditions in older people with learning disabilities across Europe.

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The POMONA II European project developed a checklist of health indicators and this study looked at age-specific differences relating to environmental and lifestyle factors. The study team collected information from a stratified sample of 1,253 adults with learning disabilities across 14 European member states. The results showed that people over 55 were more likely to [read the full story…]

Analysis of adult protection data can identify risk patterns for vulnerable adults with learning disabilities.

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This study looked at the adult protection monitoring data collected by two local authorities comparing referrals for alleged sexual abuse to referrals for other types of abuse. The authors found that over 20% related to alleged sexual abuse, with 66% of these for women. Sexual abuse was confirmed in just over a 25%. They conclude [read the full story…]

Staff training on palliative care improves practice for people with learning disabilities.

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A three phase project to develop, implement, and evaluate a palliative care training programme responsive to learning needs of staff providing services and supports for individuals with learning disabilities living in long-term care settings was evaluated. Participants in the programme were asked to rate their levels of preparation and confidence, before and after receiving the [read the full story…]

Health promotion and cancer prevention activities do not receive the attention they need in learning disability services.

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40 residential staff from 15 residential facilities completed a questionnaire about their knowledge of the risk and protective factors of stomach, breast, cervical and testicular cancer. They also completed questionnaires regarding 90 adults with learning disabilities to record details about: body mass index (BMI) lifestyle choices relating to health, e.g. diet, smoking etc testing for [read the full story…]

Community teams lack knowledge or understanding of the Mental Capacity Act.

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40 professionals working in 10 multidisciplinary community teams for people with learning disabilities in south Wales took part in the study, although psychologists and psychiatrists were not included as psychiatrists were not co-located with the team and psychologists were consulted during the development of the study. Three scenarios based on actual cases were constructed and [read the full story…]

Self-injurious behaviour persists for 20 years in over 80% of sample of people with learning disabilities.

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An examination of the quality of life and changes in behaviour for a cohort of 49 people with intellectual disabilities and self injurious behaviour (SIB) over time.  84% of the sample continued to self-injure nearly 20 years on, and whilst a number of people had moved from hospital in the period their SIB had not reduced. More [read the full story…]

Study findings challenge view that children with Down syndrome lack motivation.

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This study looked at 33 children with Down syndrome aged between 10–15 years along with a group of 33 typically developing 3–8 year-old children. The study authors measured motivation through observational assessments of curiosity, preference for challenge, and persistence, and also took reports from the children’s mothers. They found no significant group differences on motivation tasks. [read the full story…]