John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Disability harassment is commonplace and the response of public authorities is poor

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The Equality and Human Rights Commission have just published the report of their enquiry into disability-related harassment – “Hidden in Plain Sight” The report shows harassment as a commonplace experience for disabled people and uncovers a culture of disbelief and systemic institutional failures which prevent it from being tackled effectively. The report includes a series [read the full story…]

Adults with learning disabilities living in family homes may have fewer activity opportunities than those in staffed homes

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Many people with learning disabilities live in the family home, but few studies have focused on the issue of quality of life of such individuals. The researchers in this study set out to look at household and community activity for people living in the family home and compare this with those in out-of-family placements. The [read the full story…]

Lack of effective services for young people with challenging behaviour at transition tends to increase protectiveness of parents

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There is very little available in the literature that focuses on the perspectives of families caring for someone with severe or profound learning disabilities and challenging behaviour. This ethnographic study aimed to improve understanding of the experiences and perspectives of families, in particular mothers, of young people with these complex needs. The researcher carried out [read the full story…]

Staff beliefs on self harm in people with learning disabilities affect responses

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There is a limited literature about self harm in people with learning disabilities. There are some qualitative studies, but mostly relating to forensic services. The researchers in this study were interested in the extent to which the beliefs that staff hold about self-harm influence their response to the behaviour. The researchers used Q-methodology a research [read the full story…]

Government launches major consultation on the future of care and support

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The Government has launched a major consultation exercise on the future of care and support to identify the priorities the Government needs to focus on to improve the care and support system. The consultation (Caring for our future: shared ambitions for care and support) was launched yesterday, 15th September and will run until early December. [read the full story…]

Melatonin administration in autism spectrum disorder improved sleep parameters, daytime behaviour and had minimal side effects

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The researchers in this review looked at findings related to melatonin in autism spectrum disorders (ASD), including autistic disorder, Asperger syndrome, Rett syndrome, and pervasive developmental disorders, not otherwise specified. From a search of databases, they were able to find 35 studies that met review’s inclusion criteria. It was possible to perform a meta-analysis on [read the full story…]

Staff training on pain improves use of communication and assessment tools

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In 2009, researchers in Surrey completed an audit of pain recognition and management within the learning disability services there. One of the key recommendations from that audit was that staff in learning disability services should receive training in pain recognition and management. As a result, nearly 200 services in the locality (from an invitation list [read the full story…]

Study finds risk that spirituality of people with learning disabilities is being ignored

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This Scottish study set out to review the evidence on support for spirituality for people with learning disabilities, an area the author describes as relevant but neglected as a topic  and rarely addressed by healthcare professionals. The author met with a wide range of stakeholders including people with disabilities, local faith groups, service  managers, parents [read the full story…]

People with Cornelia de Lange syndrome show syndrome-specific deficit in understanding non-vocal communication

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The researchers in this study looked at the nature of communication skills in individuals with Cornelia de Lange syndrome (CdLS). The research team used the Pre-verbal Communication Schedule to evaluate communication skills in 14 individuals with CdLS, aged five to 14 years. They also identified a contrast group of 14 individuals with Cri du Chat [read the full story…]

Providing accessible information to improve access to healthcare for people with learning disabilities

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There is a developing understanding of the difficulties faced by people with learning disabilities when they want to access health services. One of the projects that the NHS set in motion to address this was the NHS Better Metrics scheme which developed measures of performance to be used for local service quality improvement. The scheme [read the full story…]