John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Health inequalities in young people with learning disabilities associated with preventable environmental determinants

Young girl and nurse

There has been a developing literature about the health inequalities experienced by people with learning disabilities, leading to a number of policy responses. This literature review focused specifically on inequalities experienced by children and young people up to the age of 18, looking to synthesize evidence on the prevalence and determinants of health conditions and [read the full story…]

Epilepsy in learning disability guidelines published

epilepsy cover

There are a number of changes underway in the way services for people with epilepsy are organised and delivered, and this new guideline includes a number of recommendations on service provision, the use of newer antiepileptic drugs and guidance in specific areas such as pregnancy and contraception, learning disability, young people. The chapter on epilepsy [read the full story…]

Including people with learning disabilities as researchers and participants in RCTs is possible

our voice

There are specific difficulties in developing an evidence base for practice in supporting people with learning disabilities. There is general agreement that some degree of sprcialist services are required, but little agreement about the nature of these services or the best method of their delivery. It may be possible to transfer ideas directly from mental [read the full story…]

Predictors of quality of life in children with learning disabilities found in social and emotional well being of parents

Family

There is now a good body of literature concerned with the quality of life of people with learning disabilities and a number of practical approaches available to consider its measurement (for example personal outcome measures  and the Quality Network) The research has identified five domains of quality of life: material well-being, development and activity, physical [read the full story…]

New RCT suggests memantine is not an effective treatment for dementia in people with Down syndrome

dementia

Our colleagues at the Mental Elf  found this small randomised controlled trial looking at the use of memantine for people with Down syndrome and dementia. The trial is being reported in the Lancet. People with Down’s syndrome are more likely to develop dementia than others and one in three will have the illness as early [read the full story…]

Targeted support and telecare can reduce staff input in services for people with learning disabilities

Computer

The need for appropriately supported accommodation for people with learning disabilities continues to rise as people naturally move from family homes to their own.  Controlling costs of support has always been a major concern for the paying authorities, but this is particularly true in the current climate of financial constraint. They key challenge is how [read the full story…]

Study identifies challenges faced by people with learning disabilities and diabetes

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There is now significant evidence of under-diagnosed, inadequately managed preventable health conditions in people with learning disabilities and we have posted previously about this as well as drawing attention to a US study that found people with learning disabilities had significantly higher prevalence of diabetes than adults with no disability: 19.4% vs. 3.8%. Despite this, [read the full story…]

Women with learning disabilities perceive little or no control over their lives

Womens_Group

Whilst there has been an increasing interest in developing measures of quality of life for people with learning disabilities, there has been little research looking specifically at the experiences of women with learning disabilities aged 40 years or older. This study set out to look at this specific group and to do this, worked with [read the full story…]

Young people with learning disabilities may feel victimised by interpersonal conflict

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The researchers in this small study set out to explore the impact of interpersonal conflict on people with mild to moderate learning disabilities. Previous research has provided insights into the nature of the impact of such conflict on increasing stress and contributing to poor mental health, but few studies have looked at the experiences of [read the full story…]

Concept of quality of life of families of people with learning disabilities develops in research

family on beach

This review of the literature sets out to look at developments in concepts and measures of family quality of life. The authors identify a developing trend from interventions for people with learning disabilities based solely on the individual’s special needs independent of the family and environmental context through to a position where these needs are [read the full story…]