John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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People with both fragile x syndrome and autism had unique profile of vulnerability

fragile x

Fragile X syndrome is a common cause of inherited learning disability and can affect one in 2000 males and one in 4000 females and is due to a mutation at an inherited fragile site on the X chromosome. The researchers in this study were interested in looking at the behavioural profile of people with fragile [read the full story…]

Nearly 1 in 5 siblings of children with autism spectrum disorders will also have the condition

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Our colleagues at the Mental Elf  found this large cohort study from California which explored the risk of autism in children of families with one child already diagnosed with the condition. Previous research estimated the risk to be between 3-10%, but this evidence was always regarded as unreliable.   This study looked siblings of children [read the full story…]

International review of deinstitutionalisation outcomes shows gains in quality of life but poor responses to health care needs

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As long ago as 1994 Emerson and Hatton produced a review of UK literature on the outcomes for people with learning disabilities leaving long stay institutions (Emerson E & Hatton C (1994); Moving Out: Relocation from Hospital to Community) which involved 2,350 service users. The findings of this review of international studies nearly twenty years [read the full story…]

Self management of diabetes is possible for people with learning disabilities with the right supports

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We posted last week about the  challenges faced by people with learning disabilities and diabetes. This New Zealand study looked at the additional challenges associated with self-management, which for people who do not have learning disabilities is encouraged. As the authors point out, this requires understanding of the disease and the implications of the actions [read the full story…]

No differences found on components of empathy in matched groups of offenders and non offenders with learning disabilities

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The researchers in this UK study set out to look at empathy in sex offenders with learning disabilities, with a view to exploring the differences between this group and non offenders with learning disabilities. They used specific measures of the components of empathy. They compared the scores of 21 sex-offenders and 21 non-offenders with learning [read the full story…]

Short breaks services must adapt to support children with complex needs

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Short break services provided to families of children with learning disabilities and severely challenging behaviour are offered as a key element of support. Critical to the success however is the way in which the service can be provided to fit the individual needs of the young person with complex needs. The authors of this study [read the full story…]

More people with learning disabilities in England live in their own homes but still face inequalities in health and employment

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Learning Disability Partnership Boards were established as a result of the Valuing People White Paper to work within the overall framework of local strategic partnerships to oversee inter-agency planning and service development. Crucial to the success of partnership boards was that the membership should be multi stakeholder, to include service users, carers, senior representatives from [read the full story…]

Updated estimates for social care services for people with learning disabilities suggest sustained growth in need

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This update from the improving health and lives public health observatory updates previous work from 2008, where estimates of future need for services for people with learning disabilities were made. The current report estimates the need for adult social care support for people with learning disabilities in England for the period 2009-2026. The new model [read the full story…]

Teaching staff and family carers benefit from combined training around children with learning disabilities and challenging behaviour

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The researchers in this study were interested in the impact of training in supporting children with learning disabilities described as having challenging g behaviour. This training may be delivered to families and to teachers, but rarely at the same time. The authors were interested in the impact on outcomes if training were delivered to both [read the full story…]

Study recommends screening for malnourishment in high risk individuals with learning disability

There are a number of studies that have shown increased prevalence of overweight and obesity in people with learning disabilities. This qualitative study set out to consider the underweight status. The prevalence of underweight is also relatively high in people with learning disabilities, but as the authors state, it is not clear from the literature [read the full story…]