John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Actigraphy offers insight into sleep problems of older people with learning disabilities

Sleep

Sleep problems in young people with learning disabilities have been explored in a number of studies, particularly in relation to the impact on families and supporters, but there is relatively little in the literature about the impact of sleep problems on older people with learning disabilities. The researchers in this Dutch study wanted to look [read the full story…]

CQC report claims people with learning disabilities often not at the centre of their own care

our voice

Following the allegations of abuse uncovered by the BBC panorama programme, the Care Quality Commission (CQC) has been involved in a targeted programme of 150 unannounced inspections of hospitals and care homes that care for people with learning disabilities. The programme is designed to identify whether people with learning disabilities are getting safe and appropriate [read the full story…]

Over one third of adults with severe learning disabilities living in private households in England have autism according to new NHS report

NHS information centre logo

Adults with severe learning disability also have a greater likelihood of having autism according to a new report published by the NHS Information Centre. The report combines data from the Adult Psychiatric Morbidity Survey (APMS) 2007 with findings from a new study based on a sample of people with learning disabilities living in private households [read the full story…]

Adult mediation has pivotal role in promoting engagement through haptic strategies in children with learning disabilities and visual impairment

Grapevine

This review of the literature looked at issues relating to the development of haptic exploratory strategies in children who have visual impairment and learning disabilities. Haptic perception refers to the recognition of objects through touch, involving the perception of patterns such as edges, curves and textures, whereby people can identify three-dimensional objects by moving their [read the full story…]

Personal digital photography may help to assess dietary quality in people with learning disabilities

Video_filming

A number of studies have looked at difficulties with overweight and underweight in people with learning disabilities. An added challenge is the issue of dietary assessment, where getting accurate information about the diet of people with learning disabilities can be difficult. The researchers in this study wanted to look at whether  the use of personal [read the full story…]

Better understanding of caregiving intentions of siblings will enable better support to be provided

Family

Older families, where people with learning disabilities live with parents, brothers or sisters over 65, may need more support as they get older.  As life expectancy for people with learning disabilities is it may be that increasingly, siblings will assume responsibility for care. The researchers in this study were interested to look at what factors [read the full story…]

Lack of activity for adults with learning disability also impacts on siblings

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Ten years ago, the Mencap campaigns team produced a document setting out the lack of activity for many people with learning disabilities, A Life in the Day, Campaigns Team, Mencap, February 2002.) This continues to be a concern today for many. This US study responded to the concerns expressed by parents and professionals about the [read the full story…]

Learning Disability Nursing task group call on NICE to establish evidence based guidelines for commissioning

Report

In recent years, the number of people training as learning disability nurses has been falling. This report presents some of the issues believed to be at the heart of this and presents some potential solutions. The report includes an analysis of: the difficulties in reliably identifying national supply and demand problems with numbers of student [read the full story…]

Some people with learning disabilities may have a partial understanding of the concept of death

Comfort

It is clearly important to pay close attention to the emotional needs of people with learning disabilities at a time of bereavement, but this can be especially difficult to do if the bereaved person has a limited understanding of the concept of death. The researchers in this study wanted to understand how people with learning [read the full story…]

Further evidence suggests anxiety is part of behavioural phenotype of Williams syndrome

Breakdown

Williams syndrome is genetic condition caused by gene deletion and is estimated to have a prevalence of 1 in 7,500 to 1 in 20,000 live births. Previous studies, which have relied mainly on the testimony of parents and carers, have suggested that people with Williams syndrome may have a disposition towards anxiety. The authors of [read the full story…]