John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Offenders with learning disabilities in mental health courts more likely to receive behavioural or vocational rehabilitation

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Mental Health courts were established in the USA in the 1990s, and were designed to help offenders with a mental health diagnosis who might end up in prison to have access to long-term community-based treatment. Mental health courts were piloted in England in 2009 to ensure that a defendant’s mental health or learning disability was [read the full story…]

Small study finds high rates of clinically significant psychiatric problems in children with ASD

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Previous studies trying to reach an understanding of the rate of co-morbid psychiatric problems in children with autism spectrum disorders have reported significantly varying findings. The authors of this matched control study wanted to look at patterns of co-morbid psychiatric problems in such and their parents compared a group of controls matched for IQ, and [read the full story…]

Positive beliefs held by adolescents about people with learning disabilities may mask underlying hostile attitudes

There is sparse evidence for the efficacy and safety of antipsychotics in people with learning disabilities.

Inclusion is at the heart of national policy relating to the support of people with learning disabilities, but there is little research available into the attitudes of the general public to people with learning disabilities. The researchers in this study were interested in particular in the how young people from White British and South Asian [read the full story…]

ABA reduced carer burden but was no more effective than standard care in improving social outcomes in people with learning disabilities

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Applied behaviour analysis (ABA) is a way of helping people to change their behaviour by focusing on the observable relationship between behaviour to the environment. ABA has led to a range of specific procedures that have enabled analysts to develop tailored intervention programmes based on functional analysis, specifically designed for individuals in their environments. This [read the full story…]

New website for doctors to help provide better care for people with learning disabilities

GMC

We have posted many times about the mounting evidence suggesting that people with learning disabilities are often poorly served by healthcare services. The recent Mencap report, “Death by Indifference 74 deaths and counting” drew attention to these continued failings in the NHS. The General Medical Council has been working to expand and explain its guidance [read the full story…]

Study finds clinical severity in Rett syndrome increases with age

Two women

Rett syndrome is a neurological disorder mainly affecting females which although present from birth, may remain undetected until around one year of age. Many people with Rett syndrome have a mutation on the MECP2 gene on the X chromosome. The authors of this study were interested in describing the Rett syndrome behavioural phenotype by using [read the full story…]

Study finds unexpectedly moderate or high self-esteem in men with learning disabilities in forensic service

man at fence

Self-esteem is a concept well used in psychology to describe how a person evaluates their own worth and can be viewed positively and negatively. In this quantitative study, the researcher was interested in how prevalent low self-esteem was in a population of people with learning disabilities in a forensic service. She used an adapted version [read the full story…]

Adults with learning disabilities directly report more health problems, particularly headaches and pain, than their carers

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Getting information from people with learning disabilities about their health is often done through discussions with professionals and carers. The authors of this study wanted to know more about the health problems people with learning disabilities themselves reported and whether there were differences from what their carers’ reported. They explored this by carrying out a [read the full story…]

Review highlights need for specific models to measure quality of life for people with learning disabilities

Analysis showed significant lack of robust evidence on impact or cost effectiveness

A key indicator of service outcomes for people with learning disabilities is quality of life. However, there continues to be debate in the literature about the best way to define this and the best way to measure it. Most of the major service providers in the UK for example have some form of routine outcome [read the full story…]

Clear policy and procedure required to guide social interaction between support staff and people with congenital deafblindness

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A recent review of literature suggested that interactions between support workers and people with learning disabilities with congenital deafblindess were lacking both in quantity and in quality. The authors of the current small study wanted to look in more detail at the perspectives of the support staff on their interactions with this group of people. [read the full story…]