John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Lack of strategic commitment to annual health checks threatens to widen health inequality for people with learning disabilities

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We have posted previously about health checks for people with learning disabilities, for example, the work of My Life My Choice, who looked at why it was that so few people with learning disabilities in their locality were getting access to annual health checks. We have also posted about the findings of a systematic review [read the full story…]

New NHS mandate identifies key objectives for people with learning disabilities

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The NHS has this week published a new ‘mandate’ which sets out a number of agreements between the Government and the NHS Commissioning Board, which is responsible for improving  health outcomes by supporting the commissioning of effective services. The mandate identifies five areas for improvement: preventing people from dying prematurely enhancing quality of life for [read the full story…]

Use of psychiatric diagnostic tool sharpens understanding of mental health issues in people with learning disability

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Estimates of the prevalence of co-morbid psychiatric problems in the learning disability population have varied greatly in the literature, often bedeviled by a lack of clarity around case definition. The Diagnostic Criteria for the identification of psychiatric disorders in people with learning disabilities (DC-LD) was developed by working groups of the Royal College of Psychiatry [read the full story…]

Combination of behavioural and physiological measurements may help to better understand communication of people with profound learning disabilities

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Supporting people with profound learning disabilities creates a communication challenge for those in the supporting role raising the question of how best to understand and respond when people do not use words to communicate. We have posted previously about resources available to help with this issue, for example national projects like Mencap’s Involve Me as [read the full story…]

End of life care for people with learning disabilities explored through experiences of support staff

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In the late 1990s, a group of people concerned about the quality of palliative care being offered to people with learning disabilities started a voluntary organiation now known as the PCPLD Network. The work of the network has raised awareness of the issue and also supported the research agenda into this topic. This current qualitative [read the full story…]

Multi-sensory environment reduced stereotyped behaviour for young people with learning disabilities

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Multi-sensory environments or snoezelen rooms are used in a variety of services supporting people with learning disabilities although there has until recently been a paucity of critical evaluation of their effectiveness. Although there are a number of examples in the literature of a wide range of positive outcomes when Snoezelen and  non-Snoezelen environments are contrasted, there [read the full story…]

Implementation of learning about PBS brings about significant reduction in challenging behaviours

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We have posted previously about positive behaviour support (PBS) which includes a range of approaches based upon  person centred values which use quality of life improvements for the person as an intervention and an outcome measure. This Irish study set out to look at the components of positive behavioural support interventions to try to identify [read the full story…]

Occupational Therapists gather feedback from people with learning disabilities but do little to reduce potential bias

Without each of us raising our voices, agitating, demanding and complaining, nothing much more will happen to reduce premature deaths in people with learning disabilities

Getting feedback about interventions from people with learning disabilities involves a number of challenges, including of course communication difficulties The researchers in this study were interested in how occupational therapists (OT’s) gathered feedback from people who used their services. They looked at this by asking 70 OT’s to complete a questionnaire and a subset of [read the full story…]

Positive Behaviour Support is effective in institutional and community settings review suggests

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How best to support people with severe learning disabilities and challenging behaviour is a question that has been thrown into sharp relief by the Winterbourne View scandal and subsequent pronouncements by Government about improving care for vulnerable adults. Clearly, managing risk and reducing harm are key components of the answer, but whilst necessary, will not [read the full story…]

Limited evidence of commissioners redirecting resources to local service developments in the wake of Winterbourne View scandal

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In the wake of the outcome of last week’s court proceedings involving support staff who worked at Winterbourne View hospital, there have been continuing calls to ensure that people with learning disabilities and complex needs are not placed far from home in isolated services, but receive local, skilled support. The Mansell report drew attention to [read the full story…]