John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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People with learning disabilities still not getting adequate information and support to make decisions about medications

Health information

Making the decision to consent to medical treatment requires access to information, presented in clear and understandable ways. There is evidence that that people with learning disabilities do not always understand information about medications they are prescribed, for example from the medication matters project carried out at the Norah Fry centre  which produced a series of [read the full story…]

Risk factors for falls amongst adults with learning disabilities identified in US study

our voice

In 2010, a study by Age UK suggested that up to one in three people aged 65 and over fall each year and that the cost to the NHS in England of falls amongst older people was estimated to be up to £4.6m a day. Age UK suggest that if older people took regular exercise [read the full story…]

Service providers’ perceptions show support for approaches to active ageing amongst older people with learning disabilities

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People with learning disabilities are living longer. The Royal College of Nursing website  suggests that over the course of the last century, life expectancy for this group has increased significantly, with mean life expectancy estimated to be 74, 67 and 58 for those with mild, moderate and severe learning disabilities respectively. The researchers in this [read the full story…]

Few advantages found to grouping by diagnosis in staffed housing for people with learning disabilities and autistic spectrum disorder

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The authors of this study were interested in looking at support to adults with autism spectrum disorder in staffed housing services. Their focus was on looking at whether diagnostic congregation, or grouping people with similar diagnoses, was prevalent in services and if so, whether it had any impact on outcomes. They worked with 157 adults [read the full story…]

Family carers still at breaking point says Mencap report

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Short breaks offer a way for people with disabilities and their family carers to take a break from each other. For the person supported, they offer an opportunity to be away from home and for family carers an opportunity to recharge depleted batteries. In 2003, Mencap surveyed seventy six families from across England and Northern [read the full story…]

Rates of emergency admissions to hospital higher for people with learning disabilities

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Avoiding unnecessary hospital admissions for ‘ambulatory care sensitive conditions’ (ACSCs), reduces costs and should provide good outcomes for patients. ACSCs are defined as those where ‘effective management’ at the primary care level should avoid admission to hospital. Many of the conditions identified as ACSCs, for example convulsions and epilepsy are more common among people with [read the full story…]

Findings of confidential inquiry in the deaths of people with learning disabilities ready to publish findings

Comfort

Our friends at Norah Fry in Bristol who are responsible for carrying out the work on the confidential inquiry into premature death in people with learning disabilities have asked us to let you know that the final report of the study will shortly be available and that there will be two opportunities to hear some [read the full story…]

Training programme improves health advocacy skills for people with learning disabilities

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Recent reports on the response of the NHS in England to the health needs of people with learning disabilites have uncovered poor practice and a lack of knowledge and skills (see for example Mencap Getting it Right campaign) We posted earlier in the week about the impact of liaison nursing, one response of the health [read the full story…]

Learning disability liaison nurses valued by stakeholders and improve care, education and organisational development

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We have posted a number of times about the response of health services to the needs of people with learning disabbilites and recent reports have focused on the experience of people using general hospitals (see for example Mencap 74 Deaths and counting) One response to this concern has been the development of the Learning Disability [read the full story…]

Living in own home offered choices to people with learning disabilities but location predictive of support related choices

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Choice is one of the four fundamental principles of Valuing People, the white paper produced in 2001 to guide development of support for people with learning disabilities in England. This US study looks at this principle in practice using data from the 2008–2009 National Core Indicators Project. They looked at the impact of a number [read the full story…]