John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Staff supporting people with challenging behaviour did not make or use consistent attributions about such behaviour in personal construct psychology study

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There is a wide literature on support for people with learning disabilities and challenging behaviour, and studies looking at staff attitudes and attributions form a part of this. These studies have looked at inconsistencies in responses, the impact of specific attributions on helping behaviour etc. The authors of this current study acknowledge the contribution of [read the full story…]

Needs of carers and supporters must be acknowledged to ensure good support to bereaved people with learning disabilities

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In recent years, a number of studies have begun to explore bereavement and grief in people with learning disabilities. Hollins and Esterhuyzen (1997) for example in the late 1990s reported the results of a matched control group study into the reaction of people with learning disabilities to bereavement, which found highly significant differences significant differences [read the full story…]

Sex education programmes for people with learning disabilities lacked theoretical frameworks clear objectives, measurable outcomes or evaluation strategies

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People with learning disabilities may face a number of challenges in the area of sexuality, including lack of access to information, fewer sexual experiences, negative attitudes and more experience of sexual abuse. To begin to address some of these issues, a number of sex education programmes have been developed by professionals. This study from the [read the full story…]

Five key elements of culture identified in underperforming teams supporting people with learning disabilities

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Talk to any manager who leads a team supporting people with learning disabilities and ask about what are the key features impacting on performance and the conversation will turn to team culture. However, clearly defining culture in way that is amenable to study in research has a number of difficulties and so whilst it recurs [read the full story…]

New easy read materials with advice for people with learning disabilities on how to stay safe, at home, out and about and on the internet

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As you know, here at Elf towers our aim is to bring you the published evidence in supporting people with learning disabilities, but occasionally we will also draw your attention to practice tools and resources that we think might help improving people’s lives. Today, we wanted to draw your attention to some materials produced in Essex [read the full story…]

Development of leave/abscond risk assessment in clinical practice needs evaluation and validation

Individuals more likely to be arrested or taken to ED if living indpependently or with family

The authors of this study, based at the South London and Maudsley Trust, were interested in the way in which leave for patients in secure settings is managed and in particular ways in which the risks associated with managing leave could be assessed. They point out that the number of patients who breach leave conditions [read the full story…]

More reliably user-friendly strategies to evaluate quality of life outcomes needed for people with learning disabilities

Analysis showed significant lack of robust evidence on impact or cost effectiveness

Measurement of quality of life for people who may not be able to verbally express their feelings remains a major challenge for providers of services to people with learning disabilities. Scores from self-reports of people with learning disabilities able to respond to questionnaires do not always match scores obtained from family members or support staff. [read the full story…]

Canadian Survey data show high reported rates of heart disease and thyroid disorder but low reports of arthritis, migraines, back pain and allergies

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We know that people with learning disabilities have a higher risk of a range of health conditions. Studies in the UK have shown that they have a shorter life expectancy with increased risk of early death compared to the general population, and health screening by GPs has shown significantly  high levels of unmet physical and [read the full story…]

New Outcomes Framework launched to measure effectiveness of services for people with learning disabilities

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The healthcare needs of people with learning disabilities have been well covered in the literature. The recent confidential inquiry into premature deaths found delays or problems with diagnosis or treatment and problems with providing appropriate care in response to changing needs. Annual health checks have been shown to be effective in identifying previously unknown health [read the full story…]

Carers of people with Down syndrome and dementia need access to information, review processes and futures planning

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People with Down syndrome are more likely to develop dementia than those without and indeed this is more likely to occur at an earlier age, where clinical symptoms can occur when people are in their late 40s or early 50s. There is also some evidence that there are some differences in clinical symptoms in people [read the full story…]