John Northfield

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After qualifying as a social worker, John worked in community learning disability teams before getting involved in a number of long-stay hospital closure programmes, working to develop individual plans for people moving into their own homes. He worked for BILD, helping to develop the Quality Network and was editorial lead for the NHS electronic library learning disabilities specialist collection. This led him to found the Learning Disabilities Elf site with Andre Tomlin as a way of making the evidence accessible to practitioners in health and social care. Most recently he has worked as part of Mencap's national quality team and also been involved in a number of national website developments, including the General Medical Council's learning disabilities site.

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Taught course for medical students not enough to change attitudes towards people with learning disabilities

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A couple of years ago, I was involved in some work commissioned by the General Medical Council to create a website for doctors to help them to understand their duties under GMC guidance. Amongst the many striking things about this work was some video on the site taken of some doctors in training, attending a session [read the full story…]

Eye care improvements found in joint pilot project for people with learning disabilities

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Annual health checks for people with learning disabilities were introduced as part of the introduction of a Direct Enhanced Service in England in 2008. Although researchers have found that despite such a clear policy framework, in 2009/2010 only 41% of people who were eligible for a health check received one. Reviews of the literature have [read the full story…]

Special focus, knowledge, and skill required to ensure healthcare needs of people with learning disabilities are met

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We have posted a number of times about the healthcare needs of people with learning disabilities and in particular the responses of the healthcare services. Recently, the results of the Confidential Inquiry into Premature Deaths of People with Learning Disabilities was published which found that men with learning disabilities died on average 13 years earlier [read the full story…]

Staff in residential services recognise importance of setting communication goals to improve quality of life but lack consistent guidelines

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BILD’s communication factsheet suggests that estimates of the proportion of people with learning disabilities who have difficulties with communication vary between 50% and 90%. For many people with learning disabilities, this communication will be non-verbal, or working at a pre-lingual level, which mean the use of many means including gesture, facial expression, sign language, picture [read the full story…]

Ombudsman finds service failures once again in report on death of young woman with learning disabilities

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As you know here at Elf towers, we are committed to bringing you the evidence, so that you can make informed decisions about practice. However I hope you’ll forgive a slight deviation from this aim this Friday, as we bring to your attention the publication of yet another report that highlights poor NHS care. On [read the full story…]

Quality of life measures missing in studies of outcomes of pharmacological interventions in autism spectrum disorder

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Quality of life is becoming a common outcome in the reporting of trials. The authors of this literature review were interested to look systematically at the use of quality life as an outcome in pharmacological research on Autism Spectrum Disorders. Currently, the most frequently used outcome measures in such trials are measures of changes in [read the full story…]

Issues unique to people with profound intellectual and multiple disabilities impact on autonomic nervous system signals in communication

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We have posted previously about the challenges faced by people with profound intellectual and multiple disabilities in communication and the ways in which those who support them might use a variety of tools to improve this. Researchers have asked whether it might be possible to look at changes in physiology to provide information on emotions [read the full story…]

Assistive technology can improve choice and control in support services for people with learning disabilities

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We have posted before about the use of assistive technology and in particular telecare. This week sees the publication of a new report from the Voluntary Organisations Disability Group (VODG) and the National Care Forum (NCF) which describes a number of projects which offer technological solutions to enhance personalisation. The Department of Health has defined [read the full story…]

Palatal plate therapy indicated in severe cases of orofacial dysfunction but only as part of holistic multi-disciplinary management

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We recently posted about the findings of a review of the literature relating to orofacial regulation therapy which concluded that whilst the results of published studies inferred significant positive impacts, there was a need for larger multi-centre research to produce more statistically significant and valid results. Given these findings, this paper looked in more detail [read the full story…]

Orofacial regulation therapy has positive impact but evidence base needs more robust studies

People with Down syndrome often have orofacial difficulties (a term that relates to the mouth and face) which can affect speech, swallowing and dental health. The Journal of Disability and Oral Health has recently published two reviews looking at this issue. The first looked at Orofacial regulation therapy (OFRT), developed in the 1970s by Castillo-Morales, [read the full story…]