Dr Elena Marcus is a Researcher based at St George’s, University of London. She is currently leading on a European survey study which aims to explore the information and support needs of parents and carers of children who have a congenital anomaly (conditions present from birth). The study is part of a wider European project (EUROlinkCAT) investigating the health and educational needs and achievements of children living with congenital anomalies in the first 10 years of their lives. Elena has a background in psychology and has previously worked as a systematic reviewer for the development of the National Institute for Health and Care Excellence (NICE) clinical guidelines. She completed her PhD in the Division of Medicine at University College London, where she developed and pilot-tested a quality of life questionnaire for people living with a rare liver condition, primary sclerosing cholangitis, in the UK. She has a keen interest in health psychology, quality of life research, and questionnaire development.